Traveling over 300 miles round trip for each visit, Cynthia goes to extraordinary lengths to volunteer with nothing stopping her. Cynthia has been serving as an advocate in addition to her volunteering, and even received the NYS Governor Award for exemplary service, appointed by Paul Harris Fellow by Rotary Int. and picked as an exhibitor in the National Gallery in Stockholm Sweden. She has co-authored multiple publications in peer reviewed scientific journals on study participation, study rights, and impact of the dementia. She is a sought-after-spokesperson and advisor, and has impacted study design to make studies more responsive to participants wishes and needs.
She is a shining example of what a motivated research advocate can achieve. She has been involved for almost 15 years and made a major impact on local research participation, as well as growing into a substantial national and international presence. She has illustrated what a constructive role someone can play as a Citizen Scientist.